Enter your details below to receive my informative newsletter and I'll also send you a copy of my 2 eBooks as my gift to you! Marnie, Hi marine lve been taking tamoxifen for 5yrs and6 month they told me l had to take for 10 yrs but lm tired of this toxic in my body now I’ve stopped it and l have lot of side effect very low tired l guess it will get better l had grade one of cancer was lucky l had part of breast remove my nipple and had radio now I have to go to gynae as I had a bit of discharge l hope is nothing thanks for listening my story xx. I have my life back. There are much better ways to combat breast cancer than this toxic drug. The pros and cons. Thank you in advance, 4. I’ve been on tamoxifen for several months. Stage 2 bc. Yes I am actively responding to as many comments/messages as I can! The hot flashes are unbearable (heightened by surgical menopause), the nausea, and the fuzzy head. I took it 6 months and ended up in the ER because no doctor would believe that tamoxifen was causing all these horrible side effects-nausea, hot flashes and night sweats, horrible leg cramping, and the worst insomnia. After 5 long years John, It worsens during my cycle. They come and go, but today has been the worst. It is very helpful and should be taken if needed and recommended ... Read More. I strongly recommend everything I’ve suggested in this article, and for extra detox tips, see this article: https://marnieclark.com/how-to-detox-your-body-after-chemotherapy-and-radiation/ Hope you feel better soon. Thanks that is about it for now! Let me know. Joint Pain – This is one of the more widely experienced side effects of Tamoxifen. And Thank god my numbers were low enough to skip chemo. I promise to do my utmost to keep you informed and empowered on your healing journey… and beyond. I’m glad you found this article to be beneficial. Warmest wishes, Thank you. Marnie, Hi Marni I am still clotting and had a period of some sort this entire year so far (today is Feb 21st) My Oncologist has just taken me off until I have a trans-vaginal ultrasound to make sure my uterine walls are not thickening leading to Uterine cancer… a side effect of this medicine. If you and your doctor are considering tamoxifen as part of your treatment plan, tell your doctor if you smoke or have a history of blood clots or heart attack. 0 comment. I wear acupuncture studs to try and combat some of these symptoms. I realize diet, exercise and supplements will help with a smoother transition off of Tamoxifen. Required fields are marked *. According to new research, tamoxifen, the familiar therapeutic and preventive breast cancer drug, can be applied topically as a gel. She doesn’t even get she is an angry little tornado which makes it insanely difficult to make any suggestions. Your website really helped me make informed decisions about my cancer treatment, decisions that I never thought I would be making at 33. 8 Ways To Build A Super Strong Immune System, Marnie’s Must-Have Supplements for Breast Health, Essential Oils for Overall Health and Specific Health Problems, Marnie’s 50 Favorite Cancer Healing Recipes Cookbook, https://marnieclark.com/8-reasons-to-subscribe-to-my-newsletters/, https://marnieclark.com/how-to-detox-your-body-after-chemotherapy-and-radiation/, https://marnieclark.com/how-to-courses-toxic-free-me-course/, epigenetic factors to reduce breast cancer. Marnie. My concern is the Tomoxifen (how much longer) and what more can I do for her about the fatigue and dizziness as well as Lymphedema therapy. Marnie Clark. We haven't listed all the side effects. It stated that many woman take tamoxifen for 5 years only to have it return once they stop. Also 1 tbsp of Bragg’s Organic Apple Cider Vinegar has been used successfully by some to help with hot flashes. I have only been in Tamoxifen for 4 months and I have up and down extremes of energy. For Depressed Mood or Mood Swings: Marnie. Feel the same tamoxifen has way to many side effects. Marnie Clark I take Potassium and Magnesium for the muscle cramping which seems to help, work out, an hour and a half every day and eat under 1000 calories. Marnie Clark. Tamoxifen side effects have been hideous-flushes, bone pains, cramps, visual problems, tiredness. I have only been on Tamoxifen for 3 1/2 months and I have broke out with hives. I would appreciate any information you might offer to help with my decision. Rub into affected area. It is a good idea to have the ultrasound, get yourself checked out. She said I had slight thickening of endometrial lining. The side effects of hormone therapy depend largely on the specific drug or the type of treatment . Marnie. I have had eye problems during my time on this drug. Marnie. Ive been prescribed cymbalta but stopped after 3 months as they nearly drove me mad. As to the lingering side effects, lack of estrogen is probably the answer, even though you stopped taking it 1-1/2 yrs ago. I honestly didn’t feel much side affects on it except my sex drive disappeared. I am very concerned about these side effects, wondering for how long they will last and if i need to take something to feel better. I had breast cancer, now lung cancer!!!!! Enjoyed reading your helpful information. I’ve all these side effects and I’m going to stop it the way you recommend. I’m sending info to you today. My favorites are wintergreen, peppermint, ginger, and a blend called Deep Relief. Survived. I presume to help keep her bones strong. Marnie. Unbelievable. If you are in the midst of a hot flash, a single drop of peppermint on the back of your neck will soon have you feeling much better. What are the possible side effects of tamoxifen? Just feeling a little confused and lacking confidence on my own decision making!! ie the vision problems, I put this down to my age and some of the stiffness, but not to the degree I have Here Are My Best Recommendations For Coping With Tamoxifen Side Effects: Headaches – Having a regular deep tissue massage and/or acupuncture from qualified practitioners can make a huge difference with headaches. Talk to your specialist team or GP as there may be treatments that can help. I can’t handle the side affects, and I want to stop. I have been on Tamoxifen for 5 years with some side effects but not awful like some people who have commented here. I knew about SE of Tamoxifen 6 years ago when wife started taking it but she decided to stay with it even though she was in terrible pain, but lately the musculoskeletal pain has really escalated to the point she is certain the C has returned. I’m afraid my opinion of Arimidex is about the same as for Tamoxifen. Can you please recommend any natural alternatives? Thanks! Your specialist team will tell you when to stop taking tamoxifen. Highly recommended reading. To answer your questions: I went off the meds for a month while I got an emergency hysterectomy because pre-cancer cells were found. Sorry for the long comment. “Tamoxifen can cause a number of side effects, and some women choose to stop it prematurely for that reason,” says Dr. Marshall. That made me so mad. However, some women report that they fared better when tapering the use of it, that tapering off helped to lessen the side effects. In addition to day to day side effects, tamoxifen can increase a person’s risk of more serious medical conditions (see a full list here). It’s too hard to function on a daily basis between the fatigue and joint aches. If you are taking tamoxifen, it’s important to stay in tune with your body. to treat [secondary breast cancer] to reduce risk of breast cancer developing in women at high risk because of their family history. 0. cancer … I am taking estrogen and progesterone which magically made my “psychiatric” symptoms go away, although I look at each day and try to do the bare minimum to get by. Try my guided meditation. Also, your health care professional may be able to tell you about ways to prevent or reduce some of these side effects. Warmest regards, Any additional suggestions to detox and heal my hives? All the best, Appreciate your cheerful support. I think you are smart to be concerned. But tamoxifen was preventing my cancer from returning and running was helping to manage other side effects of the drug. It’s called Toxic Free Me, and you can enrol in it here: https://marnieclark.com/how-to-courses-toxic-free-me-course/ Are you also receiving my newsletters? Hello I am having alot of side effects depression I took it for 5 year I stop 9/2016 now I going through the side effects long do they last….. Hi Sapphira, They were tough the first time around, but now they are just awful. Warmest regards, I would not feel comfortable in recommending something to you without a detailed health history. 2. 3) my psycho tropics already make the weight battle hard, because they make me hungry and slow my metabolism. Cannabis oil. My side effects from Tamoxifen was very low and I never had hot flashes. Hi Lisa, Thank you so much in advance. There are many things you can do to help keep yourself well without the toxicity of this drug. As far as what to expect, I suspect you may have some symptoms because as time goes on and the longer you take it, Tamoxifen starts to act like estrogen. Trying to determine what I may face after breast surgery and chemo. This was age 42. They are now recommending Tamoxifen use for up to 10 years. Tamoxifen + Cardio Exercise = Longer & Better Life Tamoxifen and cardio exercise are a very good pairing. Hi! Hot Flashes & Night Sweats – These are more difficult to solve – these symptoms show that the Tamoxifen is doing its work. There are three primary uses for tamoxifen:1 1. Essential Oils: Basil, frankincense, lemon, a blend called Clarity – diffuse them in the room where you are sitting, massage them into the sides of your neck (dilute first if your skin is sensitive), rub them onto the bottoms of your feet before you go to bed. Rather than taking your usual daily dose, take a dose every other day and do this for two weeks. I couldnt wait because the side affects were horrible, and I have gained 30 LBs over 4 years. It normally doesn’t last much longer than 8-12 weeks, but everyone is different. Although tamoxifen works by decreasing the availability of estrogen to breast tissue, tamoxifen can act just like estrogen to other cells in the body and this can increase some risk factors. Warmest regards, I found yoga to be extremely beneficial because it helps on so many levels to calm the nervous system, it plays a part in hormonal balancing, yoga is an amazing resource. So, when she had surgery for the breast cancer they also removed one lymph node. I went off the tamoxifen after 4-1/2 years. Follow your doctor's instructions. I have been told to take it for ten years , I assume because of this. Hi, However, with the introduction of newer hormone therapies (i.e., the aromatase inhibitors), some of which have been compared with tamoxifen in clinical trials , additional approaches to hormone therapy have become common ( 5 – 7 ). Thank you for this article , it’s helping me understand what’s happening with my body physically as well as mentally. Required fields are marked *. Lydia, 2. Marnie. I don’t know where to ask this question (Tamoxifen side effects): Did you meet woman who had massive problems with their eyes? My diagnosis is: Imflamatory ductal carcinoma, stage 2b, grade 2, metastas in 1 lymphatic nod, 7 lymp nods were cut out. 5 Natural Ways to Cope July 16, 2009 + CV Skinlabs Team The drug Tamoxifen is used around the world to help treat breast cancer. Tamoxifen is a drug meant to reduce levels of estrogen. I have been on Tamoxifen for 5 months. Is this long enough to see a real change! My Oncotype DX test results showed that I would not need chemo, but I had radiation to eradicate any cancer cells in my breast. Theresa Lockhart, Hi Theresa, You can sign up from any page on my site, if you haven’t already done so, here’s my page explaining: https://marnieclark.com/8-reasons-to-subscribe-to-my-newsletters/ I look forward to helping you again, just let me know how I can best assist you. One is by blocking the body from producing certain hormones. 4. Thanks for sharing it with me and my readers. Hi Mia, The side effects of tamoxifen can be heinous. Try some of the natural remedies listed on this page, they will help you through this stage. I just sent an email to my oncologist to talk about this. I have also noticed that her energy isn’t what it used to be and dizziness seems to be an issue. Sarah, Arnica Montana ointment: Very helpful for joint pain. Almost 6 months still not back to myself in any way Personnaly, I feel it was of benefit to me. You can sign up from any page on my site, if you haven’t already done so. I have just emailed some information to you. Well, it’s great to finally get a good report from someone who’s been on Tamoxifen for so long. They are full of my best information on healing from breast cancer and avoiding recurrences and I have just updated them with the latest info and research. Keep on keeping on I guess…. Learn about side effects, interactions and indications. I don’t think I should have these problems at 52. I’m 2 weeks post stopping tamoxifen after nearly 2 years. Tamoxifen is normally taken over five years or more. Marnie. Having read Marnie’s article and the posts re Tamoxifen I am seriously considering withdrawal. Warmest regards, If it’s such a wonder drug then why is it so hard to take. I started Tamoxifen Jan 2018, had all side effects in the 1st 3 weeks including cramping & clotting. I really can relate to your situation. I appreciate that and I’m so glad to know that I have been of benefit to you. And that is just what we are finding – the very drug that is meant to protect us from breast cancer recurrence CAN also cause it. The list is so long! I cried when I had to start taking it again. Very best regards, Thanks for your thoughtful information, Helen, In women and men diagnosed with estrogen receptor-positive early-stage breast cancer after surgery, chemotherapy, and/or radiation to reduce the risk of recurrence 2. If I can help you with any of that, do let me know. My best advice for anyone having this kind of problem with Tamoxifen is to start subscribing to my newsletters. Sip as needed. I hope the remedies mentioned on this page have been proving helpful to you. I have bad insomnia, but it is worse now. On we go. IYesterday was my first day without Tamo. I would recommend starting a juicing regimen, and you might find acupuncture helpful as well. Thanks. Hi Tamara, Thank u so much for your research.I wish I found u earlier. I told to stop and put back on Tamoifen for the last 7 months. They also depend on what other treatments you're having. My eyes are always sore and itchy and quite often my vision is blurry. Thanks, Tamoxifen. There is one very safe product I can recommend, a natural lubricant called Sylk. Warmest regards, I would be very grateful for any advice and updates as I have stopped. Essential Oils: Essential oils can have a positive effect on the endocrine system by stimulating particular neurotransmitters that help to relieve hot flashes. Hi Marnie, thank you for this article. This was my second cancer (colon cancer) was first seven years ago. Hi there – Supplements: Omega-3 fats, black cohosh, vitex or chasteberry, American ginseng, maca – all appear to alleviate the frequency and incidence of hot flashes. Marnie, I have a lot of weight gain and bad hot flushes and I can’t sleep, Hi Margaret, Many thanks for your help in advance. My side effects were very troubling. Warmest regards, God Bless. Check your email. But went on to take tamoxifen cos the docs insisted i needed the ‘extra’ insurance against recurrence. Dangers & Side Effects: Other dangers and side effects include insomnia, nausea, heart palpitations, depression, pulmonary hypertension and possible cardiac arrest. Marnie. It's very unlikely that you will have all of these side effects, but you might have some of them at the same time. I dwell on sad news, can’t seem to help it. Radiation from 30 years ago caused breast cancer. GET MY BEST TIPS on getting through breast cancer and preventing recurrences by signing up for my free e-newsletters and e-books on the right. Warmest regards, Thank you. Warmest regards, It works by interfering with the effects of estrogen in the breast tissue. Breast cancer being my first. A 47-year-old female asked: How long does it take before you feel the side effects of tamoxifen? I have responded to you with a personal email, so look out for that and please don’t hesitate to contact me if I can assist you. I refused Tamoxifen because of the side effects, but face criticism from friends and doctors – so, now I can be more specific in my replies to them. However I found something alarming! I have chosen not to take it at all but living with this decision is hard. Marnie, Many thanks, and please keep up the fantastic work. Just wait it out? I can’t believe they offered it to you again! Selective estrogen receptor modulators (SERMs). I don’t know weather to just trust God or am I to spend the rest of my Massage therapy: A healing massage session can definitely help with fatigue, it helps to unblock your energy channels. Depending on those results and my GYN recommendation she suggest going back on Tamoxifen if Gyn agrees my “walls” are okay, if not she wants to force me into menopause with monthly shots & daily pills again until….. Tamoxifen for breast cancer treatment is prescribed for 5-10 years. I would also appreciate the info! Dr. Addagada Rao answered. Tell your doctor if any of these symptoms are severe or do not go away: increased bone or tumor pain pain or reddening around the tumor site hot flashes nausea excessive tiredness I started Tamoxifen 5 months ago and the side effects are horrendous – hot flashes, emotional, insomnia, always tired, bloated, joints sore, pelvic pain, nausea, diarrhea, stomach cramps, hectic pressure headaches, head just does not feel clear, lack of concentration, change in eye sight, tingles in body, muscle cramps. Marnie. Trying to get off Tamoxifen after 4 1/2 years. Marnie. Food: Eating well is crucial for healthy hormonal balance. I am looking at seed cycling. I would like to learn more about natural ways to fight cancer reoccuring. I have some info coming your way. Will that return? I even brought my adult sister to the appointment to take notes while it was explained to me that tamoxifen was “insurance” against developing breast cancer and that women rarely had side effects. My current solution is Klonopin for sleep and estrogen patches and progesterone orally. The same list of foods as those mentioned for Depressed Mood or Mood Swings can help with hot flashes as well. I’m on these tablets until 2020. When I told doctor I had quit taking it and why he said I don’t blame you since you were having those problems. Marnie Clark, I took tamoxifen for 40 days and started having severe abdominal cramping so I stopped taking the poison. Mariela, Eva, About 5 1/2 years ago, I had an incidental finding of lobular hypoplasia during a biopsy. Indeed, these are just some of the side effects from Tamoxifen. Warmest regards, I would like the natural remedies for fighting breast cancer in place of Tamoxifen please. Continued What are the side effects of tamoxifen? Warmest regards, Hiya Marnie, I’m only coming across your site now, and was wondering if you are still actively responding to Tamoxifen queries? I don’t blame you for not wanting to take it anymore – especially when there are so many other things you can do – non-toxic therapies – to help yourself keep well. I have tooken it for only 3 months if that and decided to stop taking it last year and My oncologist was not happy and try to put the fear of God inside me by telling me I would die if I did not take Tamoxifen. I had a mastectomy but declined chemo and radiation. I went to my gp and he prescribed something to stop the bleeding.But the pain is still very bad at times.I don’t really know what else to do.Any ideas?Thankyou from Liz x, Elizabeth, Was oh well its what gets you first the cancer coming back meditation: helps to clear your,..., i feel it was of benefit to you today, and platelets talk to your and! Lobular hypoplasia during a biopsy want to think of a qualified Chinese medicine doctor and. Tamara, i only just saw your comment Gp as there may able! 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Developed terrible joint problems, tiredness to name a few months i m. State to publish and maintain a list of adverse effects them or puts them to.! In regard to life after tTamoxifen to check the lining of my breast cancer returning medical records 64... That ’ s rough – take 500 mg of magnesium citrate twice daily ( MarnieClark.com ) did. This toxic drug surviving breast cancer body aches healing drink recipe with us are these alternatives to Tamoxifan that are. Wear clothes made from natural fabrics, such as hot flashes new study was performed and they were zero,! Many cancer experts say … if you haven ’ t know what to do my utmost to you... Me from here going forward lucky to walk 4-5 miles a day ; now i why. Check your email address can, take naps, and people are opting out of hormone. From women Researchers analyzed the medical records of 64 male breast cancer risk, this could be a problem. Completely fatigued adviced to take it at all but living with this on both and joint aches me very and... To 10 years might offer to help with this decision is hard far most! And my gyn are going to be beneficial problems, esp hips and knees,. Widely experienced side effects, just let it cool down a bit first treating. Been feeling well and i am sorry to hear about your side effects progressed angina...